This Privacy Statement applies to the processing of personal data provided by sponsors, donors, benefactors, volunteers, action starters, participants, and relations (hereinafter: Personal Data), as well as data obtained from visits to and the use of the website Stichting ALS Nederland.
Stichting ALS is the owner of this website and of the data obtained through this website. Stichting ALS shall determine the purposes for which the data are processed. Stichting ALS is the 'Controller' within the meaning of the General Data Protection Regulation (GDPR). This website was made with Kentaa, a product of Kentaa B.V. Kentaa is a 'Processor' within the meaning of the GDPR. Kentaa must take adequate technical and organizational security measures to protect your Personal Data. This obligation has explicitly been included in a Data Processing Agreement between Stichting ALS and Kentaa.
Purpose of the processing of your Personal Data
Through the website Stichting ALS Nederland, Stichting ALS processes (personal) data for the following purposes:
Creating and managing a personal fundraising page and the realization and execution of sponsoring, gifts, donorship, or crowdfunding
Stichting ALS stores data such as your name, email address, bank details, data ralated to transactions or donations, participation data, the personal fundraising page or data that are relevant in case you and Stichting ALS enter into an agreement or you contribute financially to Stichting ALS's objectives as a sponsor, donor, collector, action starter, or participant to actions or events.
Notifications about activities
Stichting ALS shall keep sponsors, donors, benefactors, action starters, participants, volunteers, 'friends', and other interested parties informed about its activities by sending them emails, provided that you have given permission for this. Stichting ALS shall always ask consent before prosessing your personal data. Stichting ALS may also ask for your (financial) support through emailing.
Optimising the website and emails
To optimise the content of Stichting ALS's emails, the open and click ratio of emails can be monitored and recorded at an individual level. Stichting ALS does this to keep its messages as interesting as possible for the receiver. Cookies are also placed on the website Stichting ALS Nederland, to optimize the website and to enable us to offer relevant content. For more information, please refer to the Cookie Statement.
Improving the services
In some cases, Stichting ALS uses the email addresses of donors, sponsors, action starters, participants of events, and relations for research to improve the services.
Stichting ALS stores data to offer and execute events or travels, or to grant benefits to patients. In order to realise these objectives, we may ask for health data. You must give your explicit prior consent for the processing of these special personal data for the purposes described above. Stichting ALS registers that consent.
Social media advertising possibilities
To show you specific posts and advertisements, Stichting ALS may use the options offered by social media platforms, such as Facebook, to advertise through their services. Stichting ALS uses Facebook's email list custom audiences to reach or exclude specific target groups. Stichting ALS creates a Custom Audience by uploading the email addresses of its members/donors to an advertising tool. This group can then be linked to or excluded from a specific Facebook compaign. Stichting ALS uses the Facebook pixel to measure the effectiveness of advertisements. You can opt out from receiving advertisements or change your preferences, through the privacy settings of the social media platform, e.g. Facebook.
Method for processing your Personal Data
Stichting ALS collects (and therefore processes) personal data through different forms on this website. When you sign up for participation in an event, or start or sponsor an action, become a donor, or make a donation, Stichting ALS may ask you for your personal data. Stichting ALS also does that if you sign up for receiving (email) newsletters, request information, ask information about activities, ask a question, or respond to the website. Sometimes, Stichting ALS may validate personal data or combine them with information from external sources. This is how Stichting ALS keeps its database up to date.
If it turns out that any person who leaves their personal data on the website Stichting ALS Nederland, for any reason, is under 16, Stichting ALS shall verify if these data were provided with a parent's or guardian's consent, as far as possible with the technical means available. If such consent is missing, Stichting ALS shall not process the personal data.
Security of your Personal data
Stichting ALS has taken appropriate physical, techniccal, and organisational measures for the protection of your personal data. Through its processor Kentaa, Stichting ALS uses a secure server that can only be accessed by authorised persons. Any data you upload to online forms, is sent with encryption. Data of participants, action starters, sponsors, donors, relations, volunteers, friends, and other interested parties are stored on secure systems.
Storage period of your Personal Data
We shall not store your data for any longer than is necessary to achieve the objectives referred to in this Privacy Statement.
For realising and processing sponsoring, support payments, gifts, donations, and crowdfunding, Stichting ALS,, through its processor Kentaa, uses the services of Buckaroo B.V.. Buckaroo B.V. processes the payments between the donation platform and your bank or creditcard provider. This way, Buckaroo B.V. has access to your payment data. Stichting ALS or Kentaa, respectively, made a processing agreement with Buckaroo B.V., under which Buckaroo B.V. is obliged to take appropriate technical and organisational measures for the protection of your personal data.
Your data at action starters, participants, and project managers
In case you make a donation or a sponsor gift, or participate in a crowdfunding action (e.g. a once-only donation or contribution to a crowdfunding project or other action), the action starter/participant you sponsor or the project manager of the crowdfunding action you made a donation to, has access to your contact details and your donation. In that case, your data shall be used only to inform the action starter, participant, or project manager, to sent you a thank-you note, or to keep you informed about a campaign or action. Your data shall not be shared with third parties. You may object to the processing of your data by Stichting ALS. The provisions are fully applicable to this processing of your personal data.
Stichting ALS and any processors hired by Stichting ALS shall respect your rights under the GDPR. You can always access the data processed by Stichting ALS and have them altered or erased, free of charge. If you have a log-in account for this website, the dashboard will give you an overview of your personal data stored for the use of this website once you are logged in. Through the dashboard, you can request we erase these data. If you do not have a log-in account, you can contact us to obtain access, or have the data altered or erased.
If wished, you can also receive your data in a machine-readable format (through a link you can use to download those data), for example to send them to another organisation. You can also object to receiving specific information about the service that Stichting ALS sends you by email, telephone, mail, and/or SMS. To request a copy of your data or to object to the processing of your personal data, please contact Stichting ALS via the following email address: email@example.com. Any other questions you might have with regard to the processing of your personal data may also be sent to the aforementioned email address.
If you request Stichting ALS to erase your personal data from its database, Stichting ALS shall respond to your request proportionally. In some cases, your request for the erasure of your personal data may not be granted fully, for example, because the Dutch Tax Authority requires that agreements be kept for 7 years. Even is you ask Stichting ALS to stop contacting you for marketing purposes, Stichting ALS will have to remember your name to be able to exclude you from future campaigns. If your request for erasure of your personal data cannot be granted, partially or completely, Stichting ALS shall inform you about the reason for this.
If you have signed up for a digital newsletter or updates by email, each email contains a link through which you can opt out.
Data Protection Authority
Stichting ALS will gladly help you if you have any complaint about the way Stichting ALS processes your personal data. Under the privacy legislation, you have the right to lodge a complaint about the way Stichting ALS processes your personal data with the Data Protection Authority. Please contact the Data Protection Authority if you wish to do so (for more information, please refer to: www.autoriteitpersoonsgegevens.nl).
This Privacy Statement was originally drawn up in the Dutch language. It has been translated into the English and French language. In case of conflict between the French or English version of this Privacy Statement and the Dutch version, the Dutch version shall prevail. All terms used in this Privacy Statement shall be understood to be Dutch legal terms, and shall be interpreted in accordance with the GDPR.
If you have any questions regarding our Privacy Statement, please contact us via: firstname.lastname@example.org.
Stichting ALS reserves the right to change this Privacy Statement. We recommend that you check this Privacy Statement for changes regularly to stay informed.